6th August 2008

Altered States: A Hamster Wheel With A View

posted in Uncategorized |

Okay, so I said that I was grateful for the healthcare that I have (and I am) and that I wasn’t going to write anymore posts like this where I completely ravish the U.S. healthcare system, but I think I was a bit premature. And here’s why…

 

I got a call from a former colleague of mine who is doing some research on lesbians and health care. She says she wants to draw attention to the disparities of healthcare access between het and queer women, her ultimate goal is to provide community-based solutions to a documented problem, so she contacted me for advice (don’t ask me why). Ironically, her inquiry sent me into a tailspin. I think I’m dealing with some PTSD, not be confused with my oncoming PMS. Her inquiry triggered a lot of painful memories that I suppressed during the last year and a half.

 

It all started when I was speaking to the nurse practitioner at my doctor’s office. I told her that I was 36 and wanted to start seeing a reproductive endocrinologist. She asked me if I had been trying to get pregnant unsuccessfully for one full year—well, not exactly, I said, “I’m a lesbian and after speaking with my gyno, my partner and I decided that I need to get aggressive and meet with an RE as soon as possible”.  “Well”, she sighed it’s going to be a bit challenging because I can’t put lesbian down as a diagnosis”. So that is how I became an “infertile”. It  turns out that the diagnosis was somewhat accurate but  the exchange still stung at the time.  I understand that the nurse practitioner was a bit player in an very lucrative medical drama aka U.S. healthcare, but she definitely made me feel like there was something wrong with me and that I was trying to get away with something.  However, my gyno advised me to get that referral based on my age—not my sexual orientation.

 

Fast forward to  my 5th IUI’s and my encounter with Dr. Killjoy—not my normal RE– who after seeing my ripe-sized follicles told me that I should “come in the next day for an IUI and have intercourse with my husband that night just in case”. I gasped. Naked from the pants down, I was feeling very vulnerable, and just incredulous that I had been going to that office for at least seven months and yet he knew nothing about my lesbian identity.  I felt completely invisible. You should read the entire post here to get the full effect of the maddness. He’s the kind of doctor that doesn’t want to answer any questions and makes a lot of cultural assumptions.  Eventually, we worked it out for that cycle—“Obviously I can’t have sex with my husband, Dr. Killjoy so do you want to take two aspirin, think about the proper case of treatment in this situation and call me in the morning?” Needless to say, that experience made me doubt myself and my place on the TTC hamster wheel. “Should I really be doing this,” I asked myself as I looked at the stirrups, feeling invisible. I mean, who do I think I am to be messing with nature? I’m generally very vocal, but not typically when I’m half naked.

 

And then there are just the countless times that the nurses forget and ask me if my husband has “deposited his specimen”; or the times that I’m called to the examining room, and Nadia and I both get up and everyone looks at us and hush falls over the room. It’s disappointing because I’ve been told that this practice has a 30% lesbian clientele yet they have 10% sensitivity to the issues and that’s based on personality not on any kind of formal training or mandate, at least not that I can see. So, it’s been hard. Crazy-making. Difficult. And it adds an extra dimension to the gut wrenching nature of the TTC experience.

 

I mean after a medicated IUI cycle, which for me goes something like this… ten visits to get my vjayjay wanded at 6am,  12 nights of  shots of menopur in the gut, one trigger shot, two IUI’s and then one  eviscerating visit from AF, it’s hard to think about getting up and going back to the RE the next day to get back on the TTC hamster wheel. That alone is hard enough. I shouldn’t have to worry about making folks cringe or ducking when they mess up and ask for my husband.  It’s uncomfortable and often painful.So I’ve suppressed a lot of this. And it wasn’t until I got that phone call that it  all came rushing to the surface. Ugh.

 

At the same time, I feel guilty for writing this. I’m spoiled because I have access to assisted reproductive technology and Dr. Killjoy and Dr. Feelgood are considered experts in the field. ART is a mind-blowing technology.  IVF  just gets better with age so I’m very lucky to have the chance to do it now and the fact that I have insurance to pay for it makes me one of a chosen few.

 

So the waiting, the hoping, the crying, and the raging is really hard.  I guess, in the face of so much uncertainty, the only thing I know for sure, is that this experience has altered me. And I will never be the same.

This entry was posted on Wednesday, August 6th, 2008 at 7:11 pm and is filed under Uncategorized. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

There are currently 7 responses to “Altered States: A Hamster Wheel With A View”

Why not let us know what you think by adding your own comment! Your opinion is as valid as anyone elses, so come on... let us know what you think.

  1. 1 On August 6th, 2008, queerstork said:

    This post is one of the reasons why I love your blog. You capture so eloquently exactly how I feel!

    Crazy-making. Difficult. This process is slowly changing me too.

  2. 2 On August 7th, 2008, Sarah said:

    Funny how we supress and go on living , and then Wham! We’re slammed right back. I don’t believe in universal justice, but if I did I’d say that it is sweet justice that you have IVF coverage–to pay out of pocket and be treated as if you aren’t worth remembering would be an even larger load to bear.

  3. 3 On August 7th, 2008, Malea said:

    Have you thought about talking to the Dr’s at this practice to tell them just what you’ve said here.imo it ALL has an affect on the body and how it functions.The uneasiness of the atmosphere in that place could cause your body to go into a defense mode and that offspring would be in jeopardy if concieved and born.In the wild it’s like that .Why wouldn’t a mothers fear tell her body to NOT produce helpless offspring?

    imo we gays have to demand that our treatment be from a point of acceptance and not just tolerated.It sounds like these people simply tolerate you ,because if not a lawsuit and/or your money will go elsewhere.Find out if ohter gay women who use this practice are experiencing the same thing. You can ask on the parkslope gay parenting yahoo group. Resently,there was a question similar to yours about OBGYN experiences in NYC.

  4. 4 On August 8th, 2008, Kymberli said:

    One thing you should not feel is guilt. You’re every bit as entitled to feel insulted, hurt, and disappointed by the lack of consideration and lags in respect for who you are as a straight client would be if something similar happened to her. You shouldn’t feel guilted into accepting the emotional maltreatment you’ve received just because you’re able to continue treatment with IVF. Demanding the respect you deserve doesn’t mean that you’re any less grateful for the financial/insurance advantage that you have.

    “…I can’t put ‘lesbian’ down as a diagnosis.” What? Does she think lesbians can’t be infertile? Grrrr.

    So sorry that you have to put up with that.

  5. 5 On August 8th, 2008, sara said:

    I think this is so important and I am so glad that you wrote about it here. You have every right to feel angry and insulted– this process is hard enough without those we are supposed to place our trust in making it even more difficult. Thanks for this great post.

    And . . . check my blog! You have won an award!

  6. 6 On August 8th, 2008, jen said:

    I can completely relate. Try not to let these exterior factors squish your spirit. Your post was both heart-wrenching and poetic but know that you are not alone. I had to explain to the receptionist this week that the FedEx package that just arrived was our swimmers. She had no idea what I meant until the doctor talked to her. I thought it was hilarious…esp. since we (Tiff and I and the swimmers) arrived at the office at the same moment! Humor always helps me gain perspective and cope. Baby dust, baby dust….

  7. 7 On August 9th, 2008, Mo said:

    Mo here delurking to add my two cents:

    I went to a really good RE in NY. He was very lesbian friendly. Even let my partner do the IUIs both times. The second time resulting in our lovely daughter! He is a great guy and has assisted in getting others pregnant in a short amount of time. Not sure if you are interested in making a switch at this point. E-mail me if you interested.

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